#MillionsMissing (a global day of protest for M.E. patient rights) is only 2 weeks away! I'm organising the Oxford protest and we really need more patient shoes! These shoes will be displayed at the protest, along with your name, how long you've been sick, and what you are missing because of ME eg a family, a career, life in general. 💙 Link to #MillionsMissing in my bio.
Exciting stuff in the realm of ME Research. I've tried to summarise the Naviaux study (cos it's pretty complicated) as best I can in a blog post, link in bio 💙 A little bit from it: Essentially, we are in a hypometabolic, unrelenting state of survival, which feels AWFUL; like being partially starved of food, water and oxygen, all day, every day (for 8 years in my case). Although mercifully still getting enough, to stay alive, just. It all sounds pretty grim but understanding the mechanisms behind our illness are the first steps towards treating them and with more research like this, we might not have to just survive for too much longer. Fingers, toes and knees crossed. #mecfs #spoonie #myalgicencephalomyelitis #millionsmissing #blogger #chronicillness
